I have never seen a disease process advance so quickly. My friend is beginning to loose clarity. When he is lucid he is pretty clear that he wants to stay west and ride out the days. Then he is sure that he wants to fight and move. His oldest sister is trying to run his life and there has begun the clash of wills. Unfortunately Don’s will has been sapped by the cancer and the drugs and he has no chance against the forces that are arrayed against him.
I am tracking down the equipment and trying to get the momentum of a bureaucratic monolith to shift just a few inches to the left. I am drained by the by play of control freaks and the passive aggressive. Doctors that want to appear compassionate then when you call them they have their staff give you the runaround. Not charting an intravenous line is a pretty serious fuck-up so don’t piss and moan when I make you look up something that should already be there.
The holiday season is an excuse for people to screw off and blame the holiday. 5 days it has taken to get them to flush the IV that we didn’t need or want. The are not giving and have no plans to give medication through it so it is just another energy sink that we don’t need. We are behind the curve and it is not likely that we are going to catch up no matter how fast we dance. In the day we take to alter the plan it becomes obsolete.
The morning gave a little hope, we went for a ride and for about an hour and a half things were cool. I am now a little leery of him seeing another day.
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